During The Five Months

I learned

  • What it really meant to walk by “faith and not by sight.” So often we spout those words so piously and we do not understand the depth that they take you or at least that was my experience. Often we have faith as long as we can think of a few options on our own just in case God takes too long. In these 5 months I had no options of my own. The doctors were not sure what was causing his tachycardia. Very few understood my hope of his healing mentally and physically. Most thought I was in denial and delusional. But I knew what God did that night and what it meant.
  • That others would NOT understand and you might very well have to walk this journey alone.
  • That blessings and support would come from the most unexpected places and unexpected ways.
  • To question everything the doctors do. Research procedures and medications. Insert myself into their rounds. Demand explanations. Know what the drugs are, what they do and the side effects. It is your right and responsibility.
  • The more specialized a doctor or department is the less likely they will communicate with other doctors unless you demand it.
  • To LISTEN very carefully.
  • To document what I heard. I must confess I learned to apply that later than I should have but do it.
  • More about Kaiser Permenente  system than I every thought I would need.
  • God’s timing is perfect but not mine.
  • How to be peaceful in a storm.
  • What is important in life. My God, my loved ones. The rest is fluff and fill to make our lives more comfortable and enjoyable.
  • To expectantly watch God work.
  • To learn

Many of these lessons I am still learning but this experience has changed me. I don’t know how God is going to use what we have gone through but I know it was not for us alone. Waiting expectantly.

Five Months Ago Tonight

Five  months ago tonight, March 27, my husband flat-lined.

Five months ago tonight I faced the loss of my best friend and love.

Five months ago tonight I prayed if it is his time take him or heal him. I don’t want him to suffer.

Five months ago tonight I spent the night in emergency.

Five months ago tonight I began a painful, terrifying, horrific, rewarding journey.

Five months ago tonight I began to learn to trust what God said rather than what I saw.

Five months ago tonight I believe God answered my prayer by breathing life into Carl.

The scripture that came to me was Psalm 91 and therein I believed lay my promise.

Psalm 91:14-16 (ESV)
14  “Because he holds fast to me in love, I will deliver him; I will protect him, because he knows my name.
15  When he calls to me, I will answer him; I will be with him in trouble; I will rescue him and honor him.
16  With long life I will satisfy him and show him my salvation.”

Here we are five months later and he is back in the hospital but things are so very different.

God is still fulfilling that promise in very interesting ways.

God is Masterfully orchestrating our lives.

Scared!

Sometimes you just need to refocus. Being really scared can cause you to do that.

Carl awakened in pain from the neuropathy in his legs. Then I realized he was perspiring like a running water faucet and cold to the touch at the same time. This is usually an indication that his blood pressure has dropped too low. I put pillows under his legs to raise them. He asked for a wet wash cloth to wipe his face and neck. That was good. He was conscious and communicating. He wanted to be on his side, then his stomach and then his back all in a matter of minutes. Then he told me he was dizzy and nauseous and thought he might vomit. I went to get a container for that and he began to dry heave. I was SCARED. I asked him if I should call 911. He said he didn’t know and then I got a feeling that I should wait. I called out to God and reminded Him of the promise he gave me in Psalm 91.  One of which was when I called out that He would answer. Carl began to settle down but still had pains in his leg and nausea. I continued to pray and then I felt God instructing me to read Mark 4. I began to read and wondered why He pointed me to the parable of the sower.  I continued to read. Next came the account of the disciples being afraid that they would drown in the storm. After Jesus calmed the storm He said to them,

Why are you afraid? Have you still no faith?

That was it. That is why I had to read Mark 4. Throughout this whole ordeal, our storm, I have been learning to put my trust in what God said and not the circumstances that I see. I guess I got so comfortable in where I was that I didn’t realize I was slipping back into trusting what I saw. So the Father had to SCARE me back to FAITH; Faith in Him and what He said He would do. I have been refocused. Focused on what God promised rather than what I see happening in the healing process.

By the way, there are good things happening. The doctor’s have removed a very toxic drug called Amioderone. The side affects can cause extremely life threatening damage. It is the major contributor to the neuropathy. Since its removal, Carl is getting stronger and is standing with very little assistance. I am optimistic that he may be trying to walk by next week if not sooner. He said he feels like he is coming out of the mental fog. All these positives are the reasons I was so scared this morning.

So I say to you don’t lose focus. Keep your eyes on the promise that God has given you no matter what else may be happening. God’s course correction is not fun. Don’t give Him cause to Scare you back to Faith.

The Next Phase To Complete Healing

This post was written earlier but it an integral part of the journey, so rather than update it timewise, I decided to post it as is. I will follow with an update to some things mentioned.

It has been a very educationally journey that I and my family have been on since my husband’s heart attack in March. He finally came home from rehabilitation on Friday. He has improved so much but we still have a ways to go to reach complete restoration. Several things have come to my attention that will be included in this next phase. I discovered Dr. Steven Masley’ 30-day Heart Tune-Up. This is an eating plan which focuses on heart strengthening. I have also discovered or at least it has been confirmed that we should really pay attention to the drugs that are being prescribed for us and our loved ones.

The Tune Up

We began the 30 day journey on Saturday August 1. I had to make some adjustments because we do not eat chicken, beef or pork. Today the Chicken Stir Fry was made with tofu. The dish was quite tasty.  Just in these two days I feel better. I have also noticed the pain from my husband’s neuropathy has decreased. I will be watching that because I was told neuropathy cannot be cured and that nerve regeneration was not possible. This side effect to the eating plan is welcomed but the jury is still out on the lasting effectiveness.

Drug Fight

I will be making appointments to visit Carl’s doctors on Monday. Our discussions will center around the drug Amioderone and Warfarin initially. Amioderone has some very serious side affects that are counterproductive to his healing. Waffarin is rat poison. Need I say more?

Stay tuned

If I Had Known …

Donald Lawrence said there was a King (Queen) in me.

I wish I had known.

I went to church every Sunday as a child.

I attended Sunday School.

I was a faithful youth usher, choir member

And everything else youth were involved in.

I had no choice.

Daddy made sure of that.

I celebrated your birth

I learned that you gave your life for me.

You loved me that much.

I learned that you’re powerful

After all, you rose from the dead.

I learned you were righteous and

Required my best behavior.

And I tried.

I learned how important you should be to me

BUT if I had known

Just how much you cared

About everyday, mundane things in my life.

I would have consulted you about my college and career choices,

who I dated, where I lived.

Heck, How I felt during those confusing teenage years.

Maybe my self perception would have been better.

What other’s thought would have had less influence.

Maybe I would have realized dark chocolate was beautiful.

I mattered to you during that painful transition from childhood to adulthood.

If I had known what your loving me really meant,

Maybe, just maybe I would have made better decisions.

Maybe, just maybe I would have lived like who YOU positioned me to be.

Maybe, just maybe I would have known there was a QUEEN in me.

Dark Chocolate!

Dark Chocolate,

Nappy Hair,

They pay big bucks to get what YOU got.

Yet you are made fun of even by your own

and Denied access to the best.

Why do we accept the “Paper bag” test?

Why do you have to prove yourself worthy more than the rest?

It is interesting that

The dark piece anchors the quilt design

The dark one draws the eye in a picture or a chorus line.

The rarest of gems are black or darkest in hue.

Consider the black diamond, black opal, chocolate diamond,

the deepest ruby and sapphire.

Oh, how precious and rare, just like you.

Even in food

The darker the color the richer and more beneficial

You know that green, red, yellow veggie or fruit.

Could it be that you are so maligned because

You are Intensely Richer.

You are More Beneficial.

You are Visually Overwhelming,

 Powerfully Stunning,

You are Stronger

You are More Precious, Priceless?

It is recorded that Dark Chocolate is good for anti-aging.

Could that be why black don’t crack?

DARK CHOCOLATE, NAPPY HAIR

You got it going on!

YOU ARE BEAUTIFUL!

My Defiant Brain!

I haven’t posted in days because I have been overwhelmed with life again.I don’t know what is worse; Getting behind and playing catch up or trying to stay current. Needless to say I am in the catch up situation on all fronts. In the last few months I could only focus on my husband, his needs and the lessons learned in this process.

I have had so many thoughts that I wanted to share lately that my brain scream NOOOOOOOOOOOOOOOOO! when I tried to sort them out. I feel a short circuit do to circuit overload coming on.I hope a night or two of sleep will allow me to begin this mental sorting. In the mean time, I will just sort paperwork that needs to be done and filed.

AWWWWW! that’s painful too. Do you feel me?

It Would Be So Easy

It would be so easy to hate the shooter in the Charleston Church.

Nine dead for no obvious reason but hatred.

It would be so easy to hate the system and environment that bred that hatred.

It would  be so easy to travel back in time to slavery in the Carolinas and

Hate all slave owners, slave brokers and the good people who said nothing.

It would be so easy to blame his parents and

Hate them.

It would be so easy!

But rather I choose to do the HARD thing.

I choose to pray for the hearts and minds of the victims’ families

That they forgive the shooter in the midst of their grief.

I choose to pray for change in the shooter’s mind.

Living life abundantly, securely not fearfully for others.

I choose to forgive the system that bred this hatred.

I choose to understand that they are not living free

But bound in the prison of hatred and they don’t know it.

I choose the HARD thing.

Otherwise, I will become bound in the chains of hate;

My words will shoot the bullets of anger and hatred.

I will become him.

I choose the Hard thing.

27  “But I say to you who hear, Love your enemies, do good to those who hate you,
28  bless those who curse you, pray for those who abuse you. 

Luke 6:27-28 (ESV) 

Surprise Discovery!

After weeks of living in jeans, sweaters and T-shirts, I decided to wear a dress. It is hot and I wanted to be presentable and cool. I went into my closet and pulled out a sleeveless, floral dress that did not cling to the hips. That is how it is designed. This will work I thought, cute and comfortable. I chose comfortable ankle strapped sandals, heels of course, to wear with it. I even thought about a little makeup for a change. Happy with my choices I began to get dressed. And then it happened. I made an unexpected discovery.

My dress doesn’t fit. It is too, too big!

“Moment” Lessons

It has been almost two months since my husband’s heart attack. There have been so many life changing moments since that night. Each moment was a lesson in seeing through the lens of “Cause God Said So!”

One Specific Lesson Moment

I thought the hardest part was during the attacks. Little did I know the hardest times would be dealing with medical professionals. What made that so hard you might ask?

Attitude!

Yes, attitude; mine and theirs.

I have met some really great professionals during this journey and I am very grateful to them. But…

I have met some really arrogant “professionals.” Some doctors think their degree and training elevated them to a position higher than God. They believe they are infallible. They do not treat people but diseases. The most arrogant and collectively obnoxious was a skilled neurological team that did not see my husband the man but a specimen that needed to be commanded into some pre-defined category. They didn’t even regard the observations of the nurses on the team who were the front line for gathering intel. It never occurred to them that the person they were commanding was really manipulating them. Had they considered the man and the comments of the nurses, they would have known there was more to know.

These doctors decided that my husband’s mental condition was frail and we should accept that he is just barely above “vegetative” status. They said this in his presence. Now I must tell you that their job was to determine if he was mentally capable of understanding instructions to take care of a defibrillator implant. It turns out, he did not want the surgery. (He had a tracheotomy so he couldn’t verbally tell us) He decided to behave in a manner consistent with their findings when they came in to evaluate him. It became a very entertaining time for us and the nursing staff. We watched my husband transition from a very engaging, communicative, responsive man to a near zombie when they walked into the room. When they left, he returned to that communicative, responsive man. Now tell me, who was commanding whom?

My lesson was more about me than them. I wanted to tell them how arrogant they were. I wanted to remind them that they did not know everything and they should learn to listen to others. I wanted to remind them that they were just practicing and God was holding the deity spot for himself. That was what I wanted. God’s Spirit kept me quiet and showed me my unbecoming attitude. There was a better way to handle this. It came in the form of a survey.

More importantly, my attitude changed. I realized I could not change them in a state of anger. I realized I could not change them at all. That is God’s job. My job was to advocate for my husband with respect, God’s wisdom, firmness and love. It has been hard. I haven’t always succeeded but I am getting there.

I have so many more “moment” lessons to share but this one seems ongoing. I am sure it will pop up again. It is all about the attitude.